Tag Archives: illness

Manifestations

My experiment is complete. Vacation is now over.

Our two-week Greatest European Hits trip came to an end this past Tuesday; by Wednesday AM we were home in bed recovering from it all.

It’s true: the “recovery trip” itself required a recovery period after.

But overall, was it good for me? Did it help beat back my multiple sclerosis relapse?

Well…

Trent did photograph me every day. My hope was that those photos would, over time, reflect my physical progress. That you’d be able to see a little light come on somehow… I’m not quite sure if I believed the photos could be the evidence for or the actual cause of an improvement, but…

Here they are: Continue reading

Advertisements
Tagged , , , , , , , , , , , , , , ,

Manifesting

Even though I’ve spent all morning answering work email, I’m now “officially” on vacation.

(I guess since I get unlimited paid time off, and these will be my fourth and fifth weeks since starting six months ago, I can’t really complain about the working-on-PTO-thing…)

And since my health began deteriorating a couple weeks ago in what I believe is a direct response to my stress levels, I’ve decided to document the effect vacation will hopefully have in bringing me back to normalcy. Or at least getting me mostly recovered from this relapse.

I’ve asked Trent to photograph me every day. In my most natural state – however much effort I cared to put into getting dressed, brushing my hair, etc. I hope my energy level will come through in my choices about my appearance; I hope ever-increasing happiness levels will come through in my expression. I hope time off to rest and relax will allow me to slowly recapture my full mobility, and that progress will be manifested in my outward self.

So, to get started…

DAY 1:

After returning home from my last day of work, at 8:45 PM. Had to get my jeans off pronto because I felt like I was losing circulation in my left leg. Yelled at Trent in the car for touching me after he picked me up from BART. Cried when I couldn't figure out how to check us in online with Virgin Atlantic. Ate one takeout sushi roll for dinner and fell asleep on the couch.

After returning home from my last day of work, at 8:45 PM. Had to get my jeans off pronto because I felt like I was losing circulation in my left leg. Yelled at Trent in the car for touching me after he picked me up from BART. Cried when I couldn’t figure out how to check us in online with Virgin Atlantic. Ate one takeout sushi roll for dinner and fell asleep on the couch.

DAY 2:

First "official" morning of vacation. Spent most of it on email. Decided to go to the airport three hours early to get out of the house and away from responsibilities. Left leg still not working properly and right leg now in a lot of pain; stressed out about making the trip with a big suitcase. Oh well.

First “official” morning of vacation. Spent most of it on email. Decided to go to the airport three hours early to get out of the house and away from responsibilities. Left leg still not working properly and right leg now in a lot of pain; stressed out about walking while lugging a big suitcase. Oh well.

Time will tell what happens next. 13 more days of time, to be precise.

Ta ta for now…

Tagged , , , , , , , , , ,

Reframing

We just slipped under the 10-day countdown to our big European vacation: two weeks in London, Paris, and Munich.

There’s a lot going on right now – vacation is NEEDED on so many levels. I have (/had) three events scheduled this week at work (as my success in my new job snowballs, this seems to be the norm these days). Our house is a construction zone, still, and we are desperate to escape it. El Niño is beginning to dampen our souls. We miss our friends overseas

2016 started off at 11 and we’re afraid if we don’t dial it down fast, we’re going to experience a serious blow out before it’s all over. Continue reading

Tagged , , , , , , , , , , ,

Big

Whoa. The last week(ish) has been big. Really big. BIG.

BI-I-IG.

Like, probably the biggest week of my life, with a few exceptions…

  1. The week I got married – May 2011 – 2,500 miles from where I lived, then took off on my two-week honeymoon in the Canary Islands. That was a very, very, big week+, in a very, very good way. I had achieved a happiness that I’d never really imagined for myself, and I enjoyed it fully (something I don’t think I’d ever done before then).
  2. The (two) week(s) I moved to California – May 2006 – to take my second-chance life-changing job with Antenna Audio (later Discovery). I left behind all my family, a lifetime of friends, and my boyfriend of nine years who I later broke up with (because he didn’t want to come with me so, in my defense, he actually broke up with me and… see #1; it was for the best). That was a hugely terrifying week+ but it was a good kind of hugely terrifying; big things were happening and although I didn’t know how it would all turn out, I trusted it would be great. And I was right (after I got over the breakup).
  3. The week we moved into our first home – June 2012 – here at 3675, flew to Michigan for my grandparents’ 60th anniversary, and found out while we were there that I got my job at Art.com: the job that really bumped my career up a notch and (I have to admit) turned me into the candidate capable of the dream job I have now. That one was big because it was grownup big; I took on a lot because it was all important to me, and I made it all happen. It was a good kind of big that I controlled from start to finish.
  4. The week I spent in the hospital – June 2005 – getting my craptastic diagnosis of Multiple Sclerosis. On my F#@%ING BIRTHDAY. Oh yes – I had answers to my mysterious ailments, but otherwise this was a big week in the absolute worst kind of way: one that ended with not only my ruined birthday party but a botched hospital discharge, steroid withdrawal, an emergency blood patch on my spine, home care, an amazing series of prednisone-induced nightmares, and what was probably a fairly significant and undiagnosed case of clinical depression.

Continue reading

Tagged , , , , , , , , , , , , ,
Advertisements